Carole Scrafton

Carole Sian Scrafton, Ba(Hons) MBS(dist), Director / Co-Founder – Flutters and Strutters Patient Advocacy Organisation. Carole has established Flutters and Strutters Patient Advocacy Organisation for chronic / rare illnesses, a patient-driven and focused patient advocacy organisation that is for everyone #notjustpatients. She is a patient with multiple chronic illnesses and a genetic connective tissue disorder, two rare gene mutations, and rare bone anomalies. Connecting different stakeholders from across the medical, clinical, healthcare industries, including digital health, pharma, research and development. She is helping to develop, nurture and advocate for multidisciplinary / multi-stakeholder approaches to all aspects of medical healthcare so that chronic illness & rare disease patients can receive the type of care and treatments that they need. Supporting disease education and awareness through better medical and health communications. Also, actively working on patient engage