Cpt. Luke Rosen

Luke is an active New York State Firefighter, and the founder of two nonprofit organizations: Rescue7, and KIF1A.ORG. Rescue7 removes the burden of travel for patients and families in need of treatment, care, and participation in clinical trials. Additionally, Rescue7 creates charity competitions between nation-wide fire departments. These competitions are infused with the tradition and integrity of the national fire service. 100% of funds generated from Rescue7 patient programs directly benefit the patient advocacy group which is chosen for a rescue. Rescue7 also works closely with industry partners to strengthen relationships between biotech and patient communities. Luke Rosen and Sally Jackson founded KIF1A.ORG in 2016 following their daughter Susannah’s KIF1A diagnosis. In November 2022, Susannah was the first child affected by KIF1A to receive an experimental ASO treatment, developed by the N-lorem foundation. Luke is a community leader who works to urgently bring treatment and ca