Dan Lewi

Dan is Head of Business Development and Patient Advocacy at Pulse Infoframe where he focuses on building the impact the organisation has with clients using healthie platform to support their evidence generation needs for their clinical studies. In addition to this, Dan is the Co-founder of the Cure & Action for Tay-Sachs (CATS) Foundation which is a UK advocacy group established in 2011 when his eldest daughter Amélie as diagnosed with Tay-Sachs disease. At the time there was no group providing dedicated support to this community, and over the last 12 years they have established a support network, offer a variety of services to its family members and has been actively involved in the research investigating therapeutic treatments for Tay-Sachs and Sandhoff disease.