Dr Lucy McKay
Chief Executive Officer, Medics4RareDiseases
Lucy McKay is a UK trained doctor and the CEO of Medics for RareDisease. Lucy comes from a rare disease family and she grew up alongside a patient group that started life in her family home. After studying Human Genetics at The University of Nottingham she went on to study medicine at Barts and The London School of Medicine and Dentistry in 2010. During her medical studies she identified how medical education was contributing to the diagnostic odyssey and negative patient experiences. Lucy’s role of CEO combines her unique personal experiences with her medical training in order to improve the lives of those living with rare diseases through medical education. Lucy’s other roles include member of the UK Government’s Department of Health and Social Care’s Rare Diseases Framework Forum and Steering Committee Member for Medscape’s Rare Diseases Learning Centre.
Events Dr Lucy McKay has spoken at
- Orphan Drugs & Rare Diseases Global Congress Europe 2025 19 March 2025 – 20 March 2025