Sophie H. Turner

Sophie H. Turner, Initiative Coordinator, Empowered By Us, Strategic Patient Advocate | Inclusion Specialist Sophie is a strategic patient advocate committed to improving access, inclusion, and policy for people living with rare diseases. Living with achondroplasia, Sophie is deeply connected to the challenges faced by those with rare conditions. As the founder of Empowered By Us, a grassroots action group focused on the societal inclusion of people with dwarfism, she works to bridge gaps in healthcare access and ensure that rare disease patients, including those with achondroplasia and other forms of dwarfism, are represented in decision-making processes. With extensive experience in strategic patient advocacy and inclusion, Sophie collaborates with policymakers, patient advocacy groups, and industry to build more inclusive, patient-centered healthcare systems. She advocates for the needs of rare disease patients in both drug development and healthcare policy, aiming to create sustain