Carl Lander

Carl Lander is a Registered Nurse and Patient Advocate who is based in the UK. He lives with a rare haemolytic anaemia and has gained his ‘patient experience’ over a lifetime of care and red cell transfusions. As Research Director of the US-based non-profit Pyruvate Kinase Deficiency International Alliance, he advocates globally for people living with a rare anaemia. Carl regularly speaks on therapies in rare anaemias, age transition, and lived experience. Carl also has an interest in reducing the inequalities in women’s health when living with a rare anaemia. As a member of the Peak Registry steering committee, Carl has co-authored a range of peer-reviewed articles on pyruvate kinase deficiency and co-authored the Pyruvate Kinase Deficiency International Diagnosis and Management Guidelines. Carl has always been focused on person-centred care, but this grew whilst working with the Welsh Value in Health Centre, focusing on the development of a heart failure strategy and pathway across W